ASGI FOUNDER PROF (DR) SATISH CHANDRA, EX COMM. EPFO JOURNEY WITH AL AMYLOIDOSIS, CARDIAC (From July 2022)

In a quiet corner of bustling India, amidst the hum of daily life and the rhythm of progress, there exists a man who has embarked on a profound journey of resilience, courage, and unwavering determination. His name is Professor Dr Satish Chandra, a retired public servant and a beacon of hope for those grappling with the complexities of Amyloidosis in general and AL Amyloidosis in particular. He is grateful to all the Doctors from AIIMS, New Delhi, Max Saket, New Delhi, Apollo New Delhi, PSRI, New Delhi, Sitaram Bharatiya New Delhi, Ganga Ram New Delhi, Fortis Gurgaon, Artemis Gurgaon, Medanta Gurgaon, Paras Gurgaon, ILBS New Delhi, AFMC Pune, Ruby Hall Pune, Kokikaben Mumbai and other several doctors and experts from different parts of India have been kind to him. He had the privilege to get guidance from the experts from Mayo, Rochester, BU, UCL including Wisconcin.

The experiences with range of doctors and hospitals made him to realize this rare disease is not curable but treatable to mitigate with new norms of way of living for the patient and so is true with the caregivers. Professor Chandra’s story is not one of mere survival, but of triumph in the face of adversity. A man of profound intellect and unwavering compassion, he found himself thrust into the throes of a rare and formidable adversary: AL Amyloidosis Cardiac. This relentless condition, characterized by the insidious deposition of amyloid proteins in the heart tissue, posed a formidable challenge to the very core of his being.

As a pioneer in his field, Professor Chandra understood all too well the gravity of his diagnosis and the uphill battle that lay ahead. With a spirit unyielding and a mind fortified with knowledge, he embarked on a quest for answers, for solutions, for a path forward in the shadow of uncertainty. Through the labyrinthine corridors of medical science, he sought solace and illumination, gathering the fragments of hope strewn along his arduous journey.

With each setback and each triumph, Professor Chandra’s resolve only grew stronger, his tenacity unwavering in the face of doubt and despair. He traversed the landscape of treatment regimens, from Dara + VCD to Carfilzomib + Dexamethasone + Darafalspro, navigating the treacherous waters of uncertainty with grace and fortitude. Through the peaks and valleys of Lambda values and cardiac dysfunctions, he stood tall, a beacon of unwavering courage and resilience.

But Professor Chandra’s journey was not one of solitary struggle. Along the way, he found solace and strength in the embrace of a newfound community—the Amyloidosis Support Group of India. A haven of understanding, compassion, and shared experience, this group became a lifeline in his darkest hours, a source of solace and solidarity amidst the storm. Together, they stood as a testament to the power of connection, of empathy, of healing in the face of adversity.

And so, as the sun sets on another chapter in Professor Chandra’s journey, a new dawn rises on the horizon, ablaze with the promise of hope and renewal. His story, a tapestry of perseverance and courage, of resilience and compassion, serves as a beacon of inspiration for all who walk the path of uncertainty and adversity. May his legacy endure as a testament to the indomitable spirit of the human heart, ever reaching for the stars in the face of darkness.

This is the prologue to the extraordinary saga of Professor Satish Chandra, the founder of the Amyloidosis Support Group of India, a man whose journey with AL Amyloidosis Cardiac transcends the boundaries of mere existence and blossoms into a symphony of hope, resilience, and unwavering determination. Through his journey, Professor Chandra found strength in the Amyloidosis Support Group of India, a community that provided solace and solidarity. His story serves as an inspiration for all facing similar battles.