Research & Advocacy
Research, Advocacy & Community
Supporting awareness, participation and a stronger amyloidosis community.
ASGI Support & Awareness
PEOPLE • KNOWLEDGE • SUPPORT • A STRONGER TOMORROW
Awareness & Education
Clearer Information for Better Care
Explore patient-friendly awareness on amyloidosis, symptoms, diagnosis pathways and care.
Patient Guidance
Support that informs, connects and guides.
Practical guidance and trusted information for patients and families affected by amyloidosis.
Family & Community
Stronger connection for every journey.
Bringing patients, caregivers and families together through awareness, understanding and community support.
HOW ASGI SUPPORTS
Awareness with a human connection.
A focused support ecosystem for patients, caregivers and families seeking reliable guidance, education and community connection around amyloidosis.
ASGI Support & Awareness
People • Knowledge • Support • A Stronger Tomorrow
Real People.
Brighter Tomorrows.
Brighter Tomorrows.
Help strengthen amyloidosis awareness and patient support.
Your involvement can help more families find information, guidance and community support.
Understanding Amyloidosis
CLEAR INFORMATION • EARLY RECOGNITION • BETTER CARE
KNOW THE CONDITION
Understanding How Amyloidosis Can Affect the Body
Amyloidosis refers to a group of rare conditions in which abnormal proteins, known as amyloid, build up in tissues and organs. These deposits may interfere with normal organ function and can affect areas such as the heart, kidneys, liver, nerves and digestive system.
Why awareness is important
Because the symptoms may resemble those of other medical conditions, recognising possible warning signs and receiving appropriate specialist evaluation can be important in the diagnosis and care journey.
8%
Some studies report amyloidosis in about 8% of kidney biopsy cases.
50%
About half of patients with AL amyloidosis may have heart involvement.
900–1,200
Estimated new cardiac amyloidosis cases emerging in India each year.
Early Recognition
Timely recognition may support earlier referral, evaluation and informed medical care.
Awareness can help patients ask the right questions sooner.
ASGI supports patients and families with accessible information, awareness and guidance around amyloidosis.
Understanding Amyloidosis
Clear Information • Early Recognition • Better Care
Know the Condition
Patient Support
Understanding How Amyloidosis Can Affect the Body
Amyloidosis refers to a group of rare conditions in which abnormal proteins, known as amyloid, build up in tissues and organs. These deposits may interfere with normal organ function and can affect areas such as the heart, kidneys, liver, nerves and digestive system.
Because the symptoms may resemble those of other medical conditions, recognising possible warning signs and receiving appropriate specialist evaluation can be important in the diagnosis and care journey.
Why awareness is important
Better awareness can help patients and families discuss unexplained symptoms with qualified healthcare professionals and seek appropriate medical guidance.
8%
Some studies report amyloidosis in about 8% of kidney biopsy cases.
50%
About half of patients with AL amyloidosis may have heart involvement.
900–1,200
Estimated new cardiac amyloidosis cases emerging in India each year.
Early Recognition
Timely recognition may support earlier referral, evaluation and informed medical care.
Awareness can help patients ask the right questions sooner.
ASGI supports patients and families with accessible information, awareness and guidance around amyloidosis.
Latest
Learning Modules
Concise PDF-based learning resources designed to support awareness, patient understanding and guided amyloidosis education.
View All
06PDF MODULES
Latest Learning Modules
Founder's Story
From a Personal Diagnosis to a Purpose Larger Than Self
Leadership with lived experience
Prof. (Dr.) Satish Chandra
Visionary Founder – ASGI & RDSSDF
In July 2022, Prof. (Dr.) Satish Chandra was diagnosed with AL Amyloidosis Cardiac — a rare, life-threatening condition that changed everything. Rather than retreat, he transformed personal adversity into national purpose.
As the visionary founder of the Ram Dayalu Singh Sustainable Development Foundation (RDSSDF) and the Amyloidosis Support Group of India (ASGI), he created India's first dedicated amyloidosis support network. Driven by lived experience, Dr. Chandra bridges awareness gaps, accelerates early diagnosis, advocates for affordable care, and empowers patients, caregivers, and clinicians across the country.
His leadership aligns ASGI with RDSSDF's broader mission of public health equity, rural outreach, and systemic change — inspiring a movement where no one faces amyloidosis alone.
Awareness & Advocacy
Earlier Diagnosis
Patient & Family Support
Founder & Patient Advocate
ASGI • Living with Amyloidosis, Leading with Purpose
2022
The Turning Point
Prof. (Dr.) Satish Chandra
Founder, ASGI — Living with Amyloidosis, Leading with Purpose
Achievement Highlights
Milestones That Define Our Journey
A more refined, compact and premium presentation of ASGI’s awareness initiatives, healthcare collaborations and milestone achievements.
Achievement Spotlight
1 / 4
National Symposium on Amyloidosis: A Rare Disease 2026
A major national symposium bringing together healthcare professionals, researchers, academicians and patient advocates to advance awareness, diagnosis, treatment and patient care for Amyloidosis in India.
Featured Milestone
ASGI Gallery
National Symposium on Amyloidosis 2026
AMPRI – Delhi Patient Registry Initiative
Awareness Session at AIIMS, New Delhi
First Amyloidosis Clinic at Fortis Gurugram
National Symposium on Amyloidosis 2026
AMPRI – Delhi Patient Registry Initiative
Awareness Session at AIIMS, New Delhi
First Amyloidosis Clinic at Fortis Gurugram
National Symposium on Amyloidosis 2026
AMPRI – Delhi Patient Registry Initiative
Awareness Session at AIIMS, New Delhi
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
First Amyloidosis Clinic at Fortis Gurugram
ASGI Video Stories
Watch. Connect. Stay Informed.
Browse ASGI video highlights in a smooth auto-sliding showcase. Open any video for a larger popup player and continue through the full video set.
Our Growing Impact
Building Reach. Strengthening Support.
A snapshot of ASGI’s growing reach, community network and support ecosystem.
Experts Guiding ASGI’s Mission
Clinical expertise, diagnostics and patient-focused leadership come together here to strengthen ASGI’s role in awareness, guidance and support for patients and families.
Patron
Dr. Tulika Seth
Patron – Amyloidosis Support Group of India (AIIMS)
Professor of Haematology at All India Institute of Medical Sciences (AIIMS), New Delhi. She leads the technical working group for haemophilia and haemoglobinopathies and is a member of the Hemophilia Federation India (HFI) Executive Committee and Founding Trustee of GAP Health.
View Profile
Vice Patron
Dr. Rahul Bhargava
Vice Patron – Amyloidosis Support Group of India (Fortis)
Principal Director & Chief – Haematology, Haemato Oncology, BMT & CAR-T Cell Therapy at Fortis. He pioneered low-cost stem cell transplant centres across India and is committed to the vision of an anaemia-free and thalassemia-free India through government collaborations.
View Profile
Principal Advisor
Dr. Alok Sharma
Principal Advisor – Communication & External Relationships (Lal PathLabs)
Director of Renal Pathology, Electron Microscopy & Head of R&D at Dr. Lal PathLabs. A highly respected renal pathologist with deep expertise in amyloid typing and kidney biopsy diagnostics.
View Profile
Expert leadership with a patient-first purpose.
ASGI combines medical knowledge, diagnostic insight and compassionate guidance to support awareness, understanding and stronger patient care pathways.
Help Strengthen Every Journey
Turn compassion into care, awareness and hope.
Your support helps ASGI expand patient guidance, strengthen awareness, encourage earlier recognition and build a more connected support ecosystem for individuals and families affected by amyloidosis.
Care
Support patient and family guidance.
Hope
Strengthen connection and reassurance.
Reach
Expand awareness and advocacy.
Why your support matters
One contribution can create many meaningful ripple effects.
Instead of a typical donation block, this section highlights the real impact of support — from patient guidance to awareness-building and stronger community connection.
Help strengthen access to reliable information, community care and supportive guidance.
Contribute to public understanding, advocacy and conversations that encourage earlier diagnosis.
Help ASGI build a stronger support network across education, community and outreach.
Together, we can help no family feel alone.
Support ASGI’s work through awareness, outreach and patient-centred care initiatives.
Real Voices • Real Strength
Courage in Their Own Words
Personal reflections from people living with amyloidosis — stories of uncertainty, resilience, hope and the strength of community support.
Story 01
Satish Chandra
AL Amyloidosis
A Voice of Support
“If you need information, emotional support, or just a listening ear — our community is here for you.”
A reminder that reliable information and compassionate connection can make a difficult health journey feel less isolating.
Shared with hope and community spirit
Patient Perspective
Story 02
Mr Gopal Banerjee
Cardiac Amyloidosis
Living With Hope
“Amyloidosis brought uncertainty, but with the right care, I remain hopeful for a better life.”
His reflection highlights the importance of appropriate care, informed choices and maintaining hope while navigating a rare condition.
Care, awareness and continued resilience
Cardiac Journey
Story 03
Atul Pandeya
AL Amyloidosis
Resilience Every Day
“Amyloidosis changed my life, but I stay resilient. I continue fighting with hope and support.”
A message centred on resilience — continuing forward with support, determination and a sense of possibility.
Strength through support and perseverance
Resilience Story