What is Amyloidosis
Studies show it appears in about 8% of kidney biopsy cases, and 50% of AL amyloidosis patients have heart involvement. Experts estimate 900–1,200 new cardiac amyloidosis cases emerge in India each year.
Voices Behind the Guidance
Dr. Tulika Seth (AIIMS) – Petron – Amyloidosis Support Group of India
Dr Tulika Seth is Professor of Haematology at All India Institute of Medical Sciences (AIIMS) in New Delhi, India and leads the technical working group for haemophilia and haemoglobinopathies at AIIMS. Furthermore, she is a member of the Executive Committee of the Hemophilia Federation, India (HFI). Dr Seth is also one of the Founding Trustees of GAP health (Genomics and public health), an NGO set up to increase genetic literacy in the public.
Dr. Rahul Bhargava (Fortis)- Vice Petron – Amyloidosis Support Group of India
Dr Rahul Bhargava started his journey of Stem Cell Transplant from Medanta in the year 2010. He has completed over 1500+ transplants till date. Dr Bhargava has been credited of establishing 10 low cost centres across India namely at Sarvodaya hospital, Batra hospital, Action Balaji hospital etc. With a vision of anaemia free and thalassemia free India, Dr Rahul Bhargava actively collaborates with various government initiatives in order to provide low cost BMT treatment to the masses.
Dr. Alok sharma (Lal pathlabs)- Principal Advisor – Communication & External Relationships – Amyloidosis Support Group of India
Dr. Alok Sharma is a prominent figure at Dr. Lal PathLabs, where he serves as the Director of Renal Pathology and Electron Microscopy and Head of Research and Development. He is a highly respected renal pathologist with extensive experience and has been instrumental in establishing the company’s large renal pathology department and its electron microscopy facility
Amyloidosis -
Awareness WEBINAR
(Bihar Chapter)
Amyloidosis Awareness (Bihar Chapter) is dedicated to spreading knowledge about amyloidosis, supporting patients and families, and promoting early diagnosis across Bihar.
Patient Story
Real stories, real strength inspiring journeys of amyloidosis warriors.
If you need information, emotional support, practical advice or just a listening hear, our Myeloma Information
“Amyloidosis brought uncertainty, but with the right care, I remain hopeful for a better life."
“Amyloidosis changed my life, but I stay resilient. I continue fighting with hope and support."
1960 – present
Dr. Satish Chandra
(Prf.) Dr. Satish Chandra, the visionary founder of RDSSDF, also leads ASGI with a deep commitment to transforming amyloidosis care in India. His leadership ensures that ASGI’s initiatives align with RDSSDF’s broader mission, driving impactful change in public health, rural medical outreach, and patient support. Through his efforts, ASGI is fostering greater awareness, early diagnosis, and improved care for those affected by amyloidosis. By bridging gaps in research, healthcare accessibility, and community empowerment, he continues to inspire individuals, healthcare professionals, and policymakers to create a future where no patient is left behind.
Be a Part Of
Our Mission
Our mission is to create a patient-centered healthcare ecosystem for amyloidosis in India.
Patient Care
Treatment Access
Raise Awereness
Facilitate Colaboration
Support
Volunteer Journey
Join Us To Fight Against Amyloidosis
ASGI welcomes dedicated individuals to support our mission of amyloidosis awareness, patient care, and research. As a volunteer, you can contribute your time and skills to events, campaigns, and community outreach.
Volunteering Experience
- Policy building
- Social media Marketing
- Guidance & emotional support
- Fund Raising
Ways You Can Help:
- Raise Awareness
- Support Patients & Families
- Organise Meaningful Events
We Reached
Our Network
Funds we Raised
Fundraising experience for our donors
Helping each other can make world better
Your donation helps us provide vital support to amyloidosis patients, fund research, and raise awareness. Together, we can improve lives and create a future with better care and hope.
Donate today and make a difference!
To Know More
Webinar
Join our expert-led webinars to gain insights on amyloidosis, treatment advancements, and patient care. Stay informed, ask questions, and be part of a supportive community dedicated to making a difference.
We Need Your Help!
Dolorem ipsum quia dolor sit amet, consectetur, adipisci velit, sed quia non numquam eius modi tempora incidunt.
