Research & Advocacy
Research, Advocacy & Community
Supporting awareness, participation and a stronger amyloidosis community.
Our Leadership
People with purpose. Leadership with compassion.
ASGI is led by dedicated experts, advocates and changemakers working tirelessly to empower members, support patients and families, strengthen awareness and create lasting impact in the fight against amyloidosis.
Patient Support
Research Awareness
Community Advocacy
One shared purpose
Awareness • Support • Connection
Founder Spotlight
A vision of hope, awareness and action.
Leadership shaped by lived experience, patient advocacy and a deep commitment to building a stronger amyloidosis support ecosystem across India.
Dr. Satish Chandra
Founder
Leadership
Dr. Satish Chandra
Founder – Amyloidosis Support Group of India
India
ASGI was founded with a mission to raise awareness, support patients and advance amyloidosis research. Guided by passion and purpose, the organisation continues to grow, creating meaningful impact in the fight against this disease.
ASGI was born from a vision of hope, awareness and action in the fight against amyloidosis. Dr. Satish Chandra recognised the urgent need for a dedicated community that supports patients, empowers caregivers and advances research. What began as an awareness mission has grown into a network of advocates, medical professionals and volunteers working together so that patients feel heard, informed and supported.
Our Team
Different experiences. One shared commitment.
Caregiver insight, patient experience, technology leadership and financial guidance come together to strengthen ASGI's mission.
Co-Founder and Patron – ASGI and NGO RDSSDF
India
Committed to building awareness about amyloidosis and supporting patients, caregivers and families through community-focused advocacy.
Patient in Remission – AL Amyloidosis
Vashi, Navi Mumbai, Maharashtra, India
Diagnosed with AL Amyloidosis in 2019, underwent SCT/ABMT in 2020 and continues in remission today.
Technical Project Manager – ASGI
India
Leads technology-driven initiatives to enhance amyloidosis awareness, digital outreach and operational efficiency.
Assistant Technical Project Manager – ASGI
India
Supports technical projects, system development and digital solutions for amyloidosis awareness and patient support.
Financial Advisor – RDSSDF
India
Focused on financial integrity, compliance, strategic planning and sustainable organisational growth.
One Connected Mission
Every role strengthens the patient journey.
ASGI brings together lived experience, caregiver understanding, technology, governance and advocacy around one patient-centred mission.
Patient First
Support and guidance remain centred on the real needs of patients and families.
Caregiver Support
Caregivers receive recognition, information and stronger community connection.
Innovation
Technology and collaboration improve outreach, access and organisational efficiency.
Integrity
Transparent and responsible systems strengthen trust and sustainable impact.
Be Part of the Mission
Together, we can make amyloidosis support stronger.
Doctors, caregivers, researchers, volunteers and supporters can all contribute to better awareness, stronger connections and meaningful patient support.