Research & Advocacy
Research, Advocacy & Community
Supporting awareness, participation and a stronger amyloidosis community.
Paving the way for better amyloidosis care, awareness and support in India.
The Amyloidosis Support Group of India (ASGI) is the nation's first dedicated initiative for amyloidosis care.
Committed to ensuring that no patient feels isolated, ASGI provides essential support to patients, caregivers and medical professionals. Through community connection, collaborative medical initiatives and nationwide awareness efforts, the organisation works to improve understanding, encourage earlier diagnosis, support research and strengthen access to appropriate care.
ASGI connects awareness, reliable information, community support and medical collaboration around one shared purpose.
A focused approach built around awareness, support, learning and a stronger patient-care ecosystem.
Helping more people understand amyloidosis and recognise when specialist evaluation may be important.
Creating a compassionate support environment for patients, caregivers and families navigating the condition.
Encouraging knowledge exchange, medical education and collaborative learning around amyloidosis.
Building stronger connections among patients, professionals, institutions and the wider support community.
Prof. (Dr.) Satish Chandra is the visionary founder behind the Amyloidosis Support Group of India (ASGI) and Rural Development & Social Service Development Foundation (RDSSDF). His personal experience with amyloidosis became the foundation of a larger mission focused on awareness, patient support, medical collaboration and community-driven advocacy.
After experiencing the challenges associated with understanding and navigating amyloidosis, he recognised the need for a dedicated platform where patients and families could access reliable information, emotional support and meaningful guidance. This vision led to the establishment of ASGI as a focused support ecosystem in India.
Under his leadership, ASGI works to bring patients, caregivers, healthcare professionals, researchers and support communities closer together while promoting awareness, timely diagnosis, patient education and access to relevant medical resources.
Through ASGI and RDSSDF, he continues to support initiatives connected with public health, social development, community outreach and patient-centred care, with a focus on ensuring that people facing rare and complex conditions do not feel isolated.
His work reflects a continuing commitment to improving access to information, encouraging collaboration and strengthening support systems for patients and families across India.
A concise view of the organisation's development from foundation to a wider amyloidosis support network.
Rural Development & Social Service Development Foundation is established.
Amyloidosis Support Group of India begins operations under RDSSDF.
Support networks expand to 8 states with over 500+ patients supported.
Working toward better awareness, guidance and patient support.
Every connection, collaboration and contribution can help more patients and families find information, guidance and community support.
